Texas A&M University: Professor Patricia Goodson is leading a study of HIV-positive people who have never started AIDS drugs or who have stopped them, yet have survived for a decade or longer without developing AIDS. The website includes a link to a YouTube video describing this work and the email address of the professor if you wish to participate through an interview. All participation will be confidential.
"Anomalies". That is how mainstream science and health care view persons who have tested positive for HIV infection, have refused to submit to mainstream treatments, yet have survived for a decade or longer without developing AIDS.
If LTNPs - also known as long-term survivors, long-term healthy seropositives, elite controllers, or elite suppressors - have captured the attention of geneticists, virologists and immunologists, they have, nonetheless, gone unnoticed by clinicians, policy makers, and health educators. Nonprogressors remain, for all practical purposes, "anomalies"; mysterious cases for which science cannot easily account.
Specifically, very little is known about the lived experiences of HIV+ persons who refuse mainstream anti-retroviral therapies and remain AIDS-free for many years. Some of the questions we don't have good answers for, include:
Decisions to stop (or never start) drug treatments for HIV infection: A pilot study of long-term nonprogressors (LTNPs)
"Anomalies". That is how mainstream science and health care view persons who have tested positive for HIV infection, have refused to submit to mainstream treatments, yet have survived for a decade or longer without developing AIDS.
If LTNPs - also known as long-term survivors, long-term healthy seropositives, elite controllers, or elite suppressors - have captured the attention of geneticists, virologists and immunologists, they have, nonetheless, gone unnoticed by clinicians, policy makers, and health educators. Nonprogressors remain, for all practical purposes, "anomalies"; mysterious cases for which science cannot easily account.

